Hey! It's been a LONG time since I have written a blog post. It's because I have a thousand children, and they're all loud and busy, and they like to climb on the counters, and leave the screen door open, and all of them would stand in the light of the fridge for 2 hours straight, eating us out of house and home, if I don't regularly chase them off.
But I'm taking a few minutes to sit down and write this post because
But I'm taking a few minutes to sit down and write this post because
I need your help to do something GREAT.
Hydrocephalus is defined as "a condition in which there is an abnormal build up of CSF (cerebrospinal fluid) in the cavities (ventricles) of the brain. The buildup is often caused by an obstruction which prevents proper fluid drainage. The fluid buildup can raise intracranial pressure inside the skull which compresses surrounding brain tissue, possibly causing progressive enlargement of the head, convulsions, and brain damage. Hydrocephalus can be fatal if left untreated."1
"Each year an estimated 10,000 people in the US and Canada will be diagnosed with hydrocephalus."2.
I have a dear friend I've known on FB for years. There was a time that my own son was being observed for signs of Hydrocephalus. During that time, I met Stacey. She was the voice of reason; the one who was there to talk to me when I was beside myself with worry, all while being the busy mom of beautiful twin girls, herself, one of which has Hydrocephalus.
In 2011, I posted an entry written by Stacey, in which she shared her daughter Avery's story. You can find that post HERE.
I also got lucky enough to get Stacey to write an update in 2012, and you can find that post HERE.
Now, I know what you're thinking...what the hell are you asking us for?
Well, I'm asking you to show your support!! How?! Well...let me show you.
This is a picture of the guys from Avery's dad's work showing THEIR support. See how simple it is?
I think it would be amazing if you could take a few minutes to make a "Go Team Avery!" sign, and submit it to Know Better, Do Better's FB page. This is about Hydrocephalus awareness, and what a fun way to do that!
Hydrocephalus is defined as "a condition in which there is an abnormal build up of CSF (cerebrospinal fluid) in the cavities (ventricles) of the brain. The buildup is often caused by an obstruction which prevents proper fluid drainage. The fluid buildup can raise intracranial pressure inside the skull which compresses surrounding brain tissue, possibly causing progressive enlargement of the head, convulsions, and brain damage. Hydrocephalus can be fatal if left untreated."1
"Each year an estimated 10,000 people in the US and Canada will be diagnosed with hydrocephalus."2.
I have a dear friend I've known on FB for years. There was a time that my own son was being observed for signs of Hydrocephalus. During that time, I met Stacey. She was the voice of reason; the one who was there to talk to me when I was beside myself with worry, all while being the busy mom of beautiful twin girls, herself, one of which has Hydrocephalus.
In 2011, I posted an entry written by Stacey, in which she shared her daughter Avery's story. You can find that post HERE.
I also got lucky enough to get Stacey to write an update in 2012, and you can find that post HERE.
Now, I know what you're thinking...what the hell are you asking us for?
Well, I'm asking you to show your support!! How?! Well...let me show you.
This is a picture of the guys from Avery's dad's work showing THEIR support. See how simple it is?
"Go Team Avery! All the way from North Dakota!" |
For fun, we're going to hashtag these pictures, so Stacey can find them easier:
#GoTeamAvery
#GoTeamAvery
#HydrocephalusAwareness
#ShuntsQuitTeamAveryDoesnt
#WalkingForAHydroCure
There is also a "Team Avery" team page, raising money for the Hydrocephalus Walk they do every year. You can find that donation page HERE, if you'd like to show your support that way!
There is also a "Team Avery" team page, raising money for the Hydrocephalus Walk they do every year. You can find that donation page HERE, if you'd like to show your support that way!
If enough people do this with the hashtags above, I'll do a giveaway on my page. As of today, there are 23 more days left to donate. For every 10 people who do this with those hashtags, I will give away 1 cloth diaper at the end of this. You can find information about the diapers HERE.
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